#17 - JRL 2008-103 - JRL Home
RFE/RL
May 26, 2008
Russia: Disabled Still Largely 'Invisible' In Society
By Chloe Arnold
Copyright (c) 2008. RFE/RL, Inc. Reprinted with the permission of Radio Free
Europe/Radio Liberty, 1201 Connecticut Ave., N.W. Washington DC 20036.
www.rferl.org
MOSCOW/KAZAN -- Life isn't easy for Zifa Sadriyeva. For the past 15 years,
since a disease of the central nervous system left her paralyzed and barely able
to move, the 52-year-old has used a wheelchair.
Her husband, too, is disabled. Sadriyeva has a job -- she works from home,
making cardboard folders for a local office-supplies company. But the work pays
just 1,000 rubles ($40) a month, hardly enough to cover expenses for food and
the medications she and her husband need.
All the same, it is a job, she says, something most disabled people in Russia
do not have. By law, employment agencies in Russia are obliged to seek out work
for disabled people. But the reality is very different, according to Sadriyeva.
"What they offer at the job centers for disabled people simply isn't suitable
for us. They are all low-paid jobs," she says. "It is so humiliating. The idea
of working cheers anyone up, especially disabled people like us. I know disabled
people who were offered jobs like nursery-school teacher or boiler worker. Men
are offered jobs as plumbers; but tell me, can a disabled person work as a
plumber?"
In Tatarstan, as in the rest of Russia, companies are legally obliged to
employ a certain percentage of people with disabilities. But Dania Galiullina, a
spokesman for Tatarstan's Labor and Employment Ministry, says most companies
simply ignore the law.
"Companies that refuse to employ disabled people have to pay fines,"
Galiullina says, "but the amount of the fine is so low, most companies prefer to
accept that they are breaking the law and just pay the fine."
Out Of Sight
According to the United Nations, 14 million Russians are disabled. But it's
rare that you will see a wheelchair user, a person with Down's Syndrome, or a
blind person on the streets.
Denise Roza, director of Perspektiva, an NGO that champions the rights of
people with disabilities in Russia, says that during the Soviet period, people
with disabilities were almost never seen.
"Most disabled people were invisible. They had no rights, there was no
legislation. It was as if they weren't there -- I mean they weren't out in the
community," Roza says. "If you ask disabled people who lived through the Soviet
era, they'll tell you that, that 'We were invisible.'"
Two prominent Soviet societies that began operating in the 1920s did much to
help certain areas of the disabled community: the blind and the deaf. But
children with developmental disabilities, including Down's Syndrome and cerebral
palsy, were mostly taken away from their families and put into institutions,
Roza says, where they received little, if any, education.
"Back in the Soviet times, there was no expectation that children with
intellectual disabilities would go to school -- if they stayed in the family,
and that was very unlikely." Roza says. "There were all kinds of negative
stereotypes about children with disabilities, so [these] people were very
isolated from the community. There was no such thing as making the community
accessible. No one ever thought about that."
Today, Roza says, the emphasis for disabled children is to include them in
ordinary schools, rather than sending them to specialist institutions, where
they are cut off from the rest of society.
"Children need to be with their families, they need to be near their homes.
And they need to have a community. But that argument unfortunately doesn't
always work, because we have special educators [in Russia] -- they call
themselves 'defektologists,' a term that we dislike -- who tell us that children
are better off in this other setting," Roza says. "All you have to do is look
around you to see that you don't see people with disabilities, because they've
been isolated in special institutions. We meet a lot of these people when
they're 18, 19, 20, and it's very hard to find them jobs, because they're not
ready to go off to work, because they don't have social skills; they don't have
a network."
Societal Friction
This different approach causes some friction between the more traditionalist
groups of people with disabilities in Russia and groups that take their leads
from Western organizations.
"On the whole, we support integration, because the main aim of our society is
to integrate the deaf person into society, into ordinary society," says
Aleksandr Ivanov, the head of the Rehabilitation Department at the Russian
Society for the Deaf, which has 200,000 members across the country. "The trouble
is that this is very individual -- one deaf child might be able to study at an
ordinary school using special equipment, but there are other children who, for
various reasons, find it very difficult to learn, and so of course it's better
for them to go to specialist schools."
Natalia Prisetskaya has been in a wheelchair since a spinal injury left her
paralyzed in the lower half of her body at the age of 15. Not only did she lose
many of her teenage years, her confinement to a wheelchair meant her studies
were cut short, for the simple reason that she wasn't physically able to get to
her lectures.
"After my accident, I went to university to study," Prisetskaya says. "But it
was very difficult because there were so many stairs, and because of that I gave
up my studies."
Only now, at 34, has she completed a degree in economics, half a lifetime
after she began.
Nevertheless, more traditional schools are starting to accept children with
disabilities. In Moscow alone, 10 schools now take children with developmental
disabilities, blind and deaf children, and children in wheelchairs -- and more
are expected to welcome these children in the near future.
Citizens In Peril
For Pavel Opiyev, who has been blind since birth, integrating into society
was less difficult than for his peers. His was a rare case: his mother taught at
the local school, so unlike most blind children he was able to study at a
mainstream school for a few years before he was sent for more specialized
education. His main complaint about Russia is how difficult it is, as a disabled
person, to get around.
"Taking into account that in Moscow nothing at all is very accessible, then,
yes, [it's very difficult]," Opiyev says. "In Russia there aren't that many
disabled people who can find the strength to move around on their own. And you
can understand why: Our public transport system isn't just inaccessible, it's
downright dangerous. You take your life in your hands. On the metros and on
buses, nothing is provided for disabled passengers. And on the streets, perhaps
only one in 10 traffic lights emits a [coded audible signal for blind
pedestrians]."
In the last few years, Opiyev, who is 28, has twice been knocked down by a
car, and has nearly fallen beneath an underground train on several occasions.
At Perspektiva, Roza's top priority today is to persuade the government to
adopt the new UN convention on disabled rights. She is positive about the
future, particularly after a recent speech given by the new Russian president,
Dmitry Medvedev, in which he promised to take greater steps to help the
country's disabled population.
"This was an issue we did not talk about at all for a long time," Medvedev
said. "But the situation is changing now, and the state has made this issue one
of its priorities."
In Prisetskaya's estimation, life is starting to improve, albeit slowly, for
Russians with disabilities.
"I think we have more opportunities than before because society is starting
to change, rather a lot, and it seems to me that these days it's difficult to
force someone to stay at home," Prisetskaya says. "Also, you see more and more
disabled people on television, on the streets. You see more and more how people
who are disabled are leading ordinary lives."
RFE/RL's Tatar-Bashkir Service contributed to this report.
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